Narcolepsy Ireland News
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The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day
World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.
Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.
Thanks you to Athenry based creche Pixie Lane for holding a fundraising and awareness raising day for Narcolepsy Ireland
Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.
Karl Wilson raised awareness anf funds for Narcolepsy Ireland to mark the first World Narcolepsy Day.
The Disability Access Route to Education (DARE) is a third level alternative admissions scheme for school leavers whose disabilities have had a negative impact on their second level education.
World Narcolepsy Day (Sept. 22, 2020) is a day dedicated to raising awareness of narcolepsy on a global scale.
Thank you to Armagh Motorsports Association for supporting Narcolepsy Ireland.
Thank you to Ballycraigy Primary School for supporting World Narcolepsy Day and for fundraising on behalf of Narcolepsy Ireland.
From today, hidden disability Sunflower Lanyards will be available from the Customer Service Desk in Tesco Stores. The Hidden Disabilities Sunflower lanyard is designed to act as a discreet sign that somebody has a hidden disability and may need additional assistance while shopping. 🌻
Struggling with tiredness is a daily battle for Co Derry girl Christine Donaghy who suffers from narcolepsy
Elaine Armstrong from Narcolepsy Ireland attending the European Narcolepsy Network convention 2019.
Raising awareness for World Narcolepsy Day in Cork, a day of information sharing at the Echo Cork mini Marathon
Sound Ireland and Narcolepsy Ireland hosted a kite flying event on Bray beach to celebrate World Narcolepsy Day
On September 22nd Narcolepsy Ireland hosted a meet up in Dungannon to mark the first World Narcolepsy Day
On Sunday 22nd September Narcolepsy Ireland and Sound Ireland held a kite flying event on Enniscrone beach to raise awareness for narcolepsy and to mark the first World Narcolepsy Day.
Struggling to stay awake during lectures may sound like a joke amongst students, but Christine Donaghy knew there was something more sinister surrounding her tiredness.
22 year old Co. Sligo woman Aoife spoke to Ciara Galvin at the Sligo Champion in the lead up to the first #WorldNarcolepsyDay. She described how her life was turned upside down after being diagnosed with narcolepsy after getting a vaccination for Swine Flu.
A Dublin woman has spoken about living with narcolepsy, a condition that you can’t see but it has a great effect on a person’s life, and how it is treated in Ireland.
Jodie Kelly was 13 years old when she was diagnosed with it, but doctors took a while to diagnose her as she was told it was hormonal and she was ‘becoming a teenager’.
World Narcolepsy Day is dedicated to raising awareness for narcolepsy on a global scale. The condition is a neurological one that impairs the brain’s ability to regulate the sleep – wake cycle. Kristine Beck shares her story of diagnosis with Susan Keogh.
A Co Armagh mum whose life has been devastated by a chronic sleep disorder is bringing everyone in Northern Ireland living with the same condition together on the first ever World Narcolepsy Day.
Dylan Black spoke to Cork’s 96fm about living with narcolepsy. Dylan along with others have been raising awareness for World Narcolepsy Day this Sunday 22nd.
Tadgh Kennedy from Sound Ireland spoke to Tommy Marren on MidWest radio to raise awareness for World Narcolepsy Day
Kristine shared her narcolepsy story on the Ryan Tubridy RTE one morning show this week.
Naomi Grant spoke with Ryan this morning. Naomi and Derek’s daughter Emma developed narcolepsy when she was only 5 years old. Now almost 18 months on, Naomi talks about the impact narcolepsy has had on their lives.