World Narcolepsy Day was celebrated on the 22nd of September with a display of kites and some great sounds!
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- by Aoife McNulty
It was a fun day for everyone with a purpose of awareness of Narcolepsy a condition two of my children suffer from.
It was a day of fun & chatting to new members. It was a bringing together of children and adults who suffer alone but now know they are not alone we all can support each other, parents and sufferers of Narcolepsy.
Now I want to thank everyone for all your support for a highly successful event.
Special thanks to Mick Glynn of Planet Sound for the sound system it made it so much more effective!
Thanks to Toymasters in Ballina for the free Disney Kites which were really effective and colourful.
Thanks to Robert Mc Grath for the amazing photos so colourful and lively!
Thanks to Pat O Suilleabhain & Sea Life for the litter Picker Uppers!
Thanks to all the shops and businesses for supporting us by putting our poster up in their windows.
Thanks to The Bray People Mary Fogarty for coming along and taking photos and doing an article to spread awareness & advertising the event in advance too.
Special thanks to Order Of Malta Bray for attending and keeping watch over us all!
Thanks to Bray Municipal District - Wicklow County Council for supporting us too.
Thanks to all my crew too many to list you know who you are & you all rock!
Thanks to Narcolepsy Ireland & Sound for all your support over the years and many to come!
I think we started an event that can grow & grow!
#WorldNarcolepsyDay
Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy
The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day
World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.
Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.
Thanks you to Athenry based creche Pixie Lane for holding a fundraising and awareness raising day for Narcolepsy Ireland
Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.