Narcolepsy Ireland endeavours to comply with the General Data Protection Regulation, Data Protection Acts, ePrivacy Regulation and data protection best practices. This Policy informs individuals how Narcolepsy Ireland processes personal data in accordance with the principles of data protection identified in the data protection legislation.
We will process any personal information provided to us by individuals, whether it be provided through our website, through our other social media channels, in person, on a form, correspondence, telephone, email or by any other means, or otherwise held by us in relation to you in the manner set out in this policy.
INFORMATION COLLECTED BY US
The information about you that we may collect, use, and store (process) includes:
Information you provide to us by filling out any forms or by way of emailing us.
Records of correspondences whether by email, telephone, through any online form or by any other means,
Information you provide to us in person.
Details of any business or commercial transactions you carry out with us, whether through email, the website, telephone, or by any other means.
how we use your personal informatioN
We may use your personal information for the purposes of:
Processing any enquiry requested by you;
Complying with our legal duties and responsibilities;
MARKETING AND FUNDRAISING
Narcolepsy Ireland is a registered charity that relies on the public for support and fundraising.
In terms of data processing, subject to your explicit consent, we may also use your personal information for the purpose of:
Carrying out any membership or customer research, survey and analysis;
Fundraising activities, including event awareness,
Narcolepsy Ireland is committed to privacy by design and privacy by default. As such, you will never have to ‘opt-out’ of our communication or fundraising processes; you will only ever have the option of ‘opting in’ if you’d like to be included. We do not engage in ‘pre-ticked’ boxes on consent forms nor do we ever assume you would consent to your data being processed. Opt-In is done by following us on social media or filling out online forms. You are free to withdraw consent for any communication and or fundraising related matters at any time you want.
Narcolepsy Ireland engages in a number of social media services and we strive to uphold privacy rights online. However, sometimes members of the public may post something objectionable and beyond our control to Narcolepsy Ireland’s social media pages. In such cases, we will act to rectify any difficulties as soon as we are notified or become aware of the problem. We do not provide a continuous monitoring of social media sites/forums so there may be a slight delay from the initial post to when we become aware of a problem.
Narcolepsy Ireland sometimes hold marketing or fundraising events in which members the public may be present. Such events are often held at public locations. Sometimes we may wish to take a photograph at such events to promote our brand or event on social media. In such cases, it is our policy for our photographer/social media handler to announce their presence and provide additional instructions and assistance. However, we do not have any control over private individuals or their social media accounts and we cannot stop members of the public from posting pictures of events online without the consent of all participants.
We will take reasonable steps to ensure that your information is kept secure and protected, including but not limited to electronic data being protected using appropriate software, relevant networks safety and security checks, and, where applicable, any physical data records will be kept in an appropriately secure environment.
Personal data that is no longer required will be destroyed and or deleted in a secure manner.
We do not record or process personal data that is not required or not necessary for any of our stated purposes.
DISCLOSURE of data
We may have to disclose certain personal data in accordance with any legal obligation imposed on us. Any such disclosure would be in accordance with the law, e.g. disclosed on foot of a court order etc.
REQUESTING YOUR data
Any person has the right to find out whether an organisation has any personal data about them, what they use the personal data for and ask for copies of personal information held by that organisation.
If you wish to make a data access request in order to get a copy of any personal data we may process, please
In order to process your request we may request that you send us a copy of your identification (passport, driver’s license, etc.).
The reason we ask for personal identification is to ensure that you are the correct person making the request for your personal data.
Unfortunately, verbal access requests cannot be entertained.
In response to any data access request, you have the right to refer the matter to the Data Protection Commission if you are unhappy with the outcome, however, we ask that you would notify us first of any issue so that we may help resolve it as quickly as possible.
You have the right to rectify any incorrect or inaccurate personal data at no cost to you.
If you believe that we are incorrectly processing any of your personal data, please inform us by emailing info@NarcolepsyIreland.com
QUERIES OR COMPLAINTS
Individuals have the right to refer any matter to the Data Protection Commission by contacting them at www.dataprotection.ie or by writing to:
Data Protection Commission
Office of the Data Protection Commission
If you are, for whatever reason, considering contacting the Data Protection Commission about us we would ask that you inform us of your difficulty first so that we can try to resolve it to your satisfaction.