Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.

Important Update: Due to the global concerns about the spread of the corona virus COVID-19 and in accordance with health guidelines Narcolepsy Ireland and Sound Ireland have taken the decision to postpone our Suddenly Sleepy Saturday event on March 14th. The event will be rescheduled to a later date following appropriate guidelines.

For any questions contact us at: info@narcolepsyireland.com

Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.
Location: Citywest Hotel Saggart, Dublin
Time: 9:00 – 16:00
Tickets: €27.55 adult ticket, €10.85 for children under 16 – Children with narcolepsy under 16 go free.
Please contact Narcolepsy Ireland at info@narcolepsyireland.com for details on tickets.

Keynote Speakers

Featured
Claire Crisp
Claire Crisp

Claire Crisp is an award-winning author and advocate for children with narcolepsy. Her book Waking Mathilda – A Memoir of Childhood Narcolepsy is about 13 year old Mathilda who developed narcolepsy when she was 3 years old. Mathilda will be attending with her mum and will be speaking about her narcolepsy and cataplexy.

Matilda Crisp
Matilda Crisp

Mathilda Crisp is the daughter of Claire Crisp’s, an award-winning author and advocate for children with narcolepsy. Her book Waking Mathilda – A Memoir of Childhood Narcolepsy is about 13 year old Mathilda who developed narcolepsy when she was 3 years old. Mathilda will be attending with her mum and will be speaking about her narcolepsy and cataplexy.

Professor Emmanuel Mignot
Professor Emmanuel Mignot

Dr. Mignot is Professor of Psychiatry and Behavioral Sciences at Stanford University and Director of the Stanford Center for Sleep Sciences and Medicine. He is internationally recognized for discovering the cause of narcolepsy.

Dr Mark Patterson
Dr Mark Patterson

Dr Mark Patterson – We are delighted to welcome Dr. Patterson back. Mark is a Paediatric Consultant in Virginia, Dad to daughter Melissa who has narcolepsy and cataplexy. Mark created the BedRace for narcolepsy which he brought to Ireland in 2018. You can see more on his website at https://day4naps.org/

Ragy Tadrous
Ragy Tadrous

Ragy is a physiotherapy masters student at Trinity College Dublin. Ragy will be speaking about physical activity and exercise for people with narcolepsy.

Hilary Lyons
Hilary Lyons

Hilary Lyons is a secondary school teacher with responsibility for special education needs in her school. As she has NWC herself and understands its' impact on education, Hilary believes that we should advocate for narcolepsy as a special educational need in schools and that parents should seek accommodations accordingly for their children with narcolepsy.

Featured
Orla Nolan - Rising Voices
Orla Nolan - Rising Voices

Orla Nolan - Rising Voices

Belfast Regional Meetup
Belfast Regional Meetup

Belfast Regional Meetup

Thank You - Scoil Chroí Naofa
Thank You - Scoil Chroí Naofa

Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy

Virtual Call March 24
Virtual Call March 24

Virtual Call March 24

Cork Regional Meetup
Cork Regional Meetup

February Cork Regional Meetup

EUNN - 2023
EUNN - 2023

The 14th European Narcolepsy Days (END) conference took place in November 2023 in

Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.

During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.

Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland

NI Conference for World Narcolepsy Day 2023
NI Conference for World Narcolepsy Day 2023

Narcolepsy Ireland hosted a conference for World Narcolepsy Day

Narcolepsy Ireland is on TikTok
Narcolepsy Ireland is on TikTok

Narcolepsy Ireland is on TikTok

Show Your Support on World Narcolepsy Day 2021
Show Your Support on World Narcolepsy Day 2021

World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.

Narcolepsy and COVID-19
Narcolepsy and COVID-19

Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.

Thank you to Pixie Lane
Thank you to Pixie Lane

Thanks you to Athenry based creche Pixie Lane for holding a fundraising and awareness raising day for Narcolepsy Ireland

Suddenly Sleepy Saturday 2020 – 14th March 2020
Suddenly Sleepy Saturday 2020 – 14th March 2020

Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.