Narcolepsy and COVID19
COVID-19 is the disease caused by the novel coronavirus SARS-CoV-2. The typical presentation is with fever and/or respiratory infection, but some cases may have milder symptoms or be asymptomatic.
People with narcolepsy should have the same risk of getting the disease as the general population.
Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.
The main factors which cause increased risk of serious infection with COVID-19 are
Age >60
Long-term medical condition (e.g. heart disease, high blood pressure, diabetes, chronic lung disease, cancer)
Patients with weak immune system (Immunosuppressed)
The typical medications used for treatment of narcolepsy including wake-promoting agents (such as Modafinil, Ritalin, Concerta, Wakix), medications to treat cataplexy (such as Venlafaxine and Clomipramine) and Xyrem (Sodium Oxybate) do not suppress the immune system and should not cause any increased risk.
However, there is limited information and data available at this time. There is currently no literature on COVID-19 in patients with narcolepsy. We will continue to monitor the situation and update these recommendations if required.
It is recommended to follow the advice from the HSE, regarding hand washing, social distancing, etc.
Updated information is available at this link: https://www.hpsc.ie/a-z/respiratory/coronavirus/novelcoronavirus/
If you have any concerns, please discuss with your medical team.
For the current advice, visit:
www.hse.ie
www.gov.ie/health-covid-19
Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy
The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day
World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.
Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.