narcolepsy ireland marks world narcolepsy day in CORK AT THE WOMEN’S MINI MARATHON.
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Newly diagnosed Aoife O'Shea completed the Cork Mini Marathon on WND
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Dylan Black spoke to Cork 96fm to raise awareness ahead of WND
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World Narcolepsy Day coincided with the annual Women’s Mini Marathon in Cork this year.
Narcolepsy Ireland were at this fun-filled event to raise awareness for narcolepsy.
Thank you to our dedicated volunteers who had an stand at the day, providing company and refreshments, distributing leaflets and answering questions about narcolepsy.
Aoife O’Shea who has just recently been diagnosed with narcolepsy completed the Cork Mini Marathon on World Narcolepsy Day.
Prior World Narcolepsy Day our volunteers also arranged for media coverage. See Alice and Elaine’s interview here and here Dyl;an Black speak to 96fm here and a separate meetup in Limerick for those who could not attend the Cork event.
A big thanks to all involved in this event. And thank you to The Echo for supporting Narcolepsy Ireland and promoting narcolepsy awareness.
Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy
The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day
World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.
Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.
Thanks you to Athenry based creche Pixie Lane for holding a fundraising and awareness raising day for Narcolepsy Ireland
Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.