Struggling to stay awake during lectures may sound like a joke amongst students, but Christine Donaghy knew there was something more sinister surrounding her tiredness.
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So, worried she wouldn't get the 2:1 she knew she deserved on her Law with Politics degree at Queen's University , she decided it was time to push for answers.
Christine, who had been complaining about severe tiredness from the age of 16, was then referred to neurology experts and was eventually diagnosed with narcolepsy, a rare long-term brain condition that causes a person to suddenly fall asleep.
Her diagnosis in December 2017 came after almost four years of investigations and a lifetime of unexplained sleepiness and falling asleep at inappropriate times.
Speaking to Belfast Live, Christine - who lives in Belfast but grew up in Derry - said she wanted to bust myths around the condition and stop it being regarded as "something to be joked about"
Read the full interview here.
“It is very frustrating because people think it’s funny, people would joke and say they wish they could fall asleep anywhere”
Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy
The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day
World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.
Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.
Thanks you to Athenry based creche Pixie Lane for holding a fundraising and awareness raising day for Narcolepsy Ireland
Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.