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Emma proudly displays the kite made by all her friends at Pixie Lane

Emma proudly displays the kite made by all her friends at Pixie Lane

Thank you to Pixie Lane creche

Thank you very much Athenry based crèche Pixie Lane for their generous support and wonderful awareness campaign in support of Narcolepsy Ireland.

Parents of one of Pixie Lane’s past pupils Naomi and Derek Grant tell us about this wonderful show of support and community.

“This year for Christmas jumper day Pixie Lane Crèche in Athenry held it in aid of Narcolepsy Ireland. Emma went to Pixie Lane since she was 2 years old and was very close to all the girls in there.

Marie Hannon owns and runs the creche and it is such a fantastic place. They were so helpful when Emma got sick and helped in any way they could.

Clodagh Corcoran would take care of Emma’s younger brother Sam for all our appointments in NUI hospital or Temple Street. They were a huge support.

Not only did Marie raise 500 euro for Narcolepsy Ireland she also took the time, as she always does, to make a Kite with Emma's name on it with each of her friends and kids in the creche to show their support for her. It raised awareness for Narcolepsy among parents and children in Athenry which is so important for Emma's future or anyone with Narcolepsy”

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EUNN - 2023
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The 14th European Narcolepsy Days (END) conference took place in November 2023 in

Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.

During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.

Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland

NI Conference for World Narcolepsy Day 2023
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World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.

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Thank you to Pixie Lane
Thank you to Pixie Lane

Thanks you to Athenry based creche Pixie Lane for holding a fundraising and awareness raising day for Narcolepsy Ireland

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Karl Wilson's fun-filled fundraising evening
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World Narcolepsy Day 2020
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