
Thank you to ScoIl cHROÍ nAOFA - ATHENRY
A huge thank you to Scoil Chroí Naofa of Athenry who hosted a wondering fund raising and awareness raising day on behalf of Narcolepsy Ireland.
One of the 5th class students at Scoil Chroí Naofa developed Narcolepsy when she was 5 years old and in Junior Infants. Scoil Chroí Naofa have been wonderfully supportive since the development of symptoms and have provided an environment where all their students have an opportunity to thrive and reach their potential.
This event centered on educating all students on the impacts and symptoms of narcolepsy and in particular giving the 5th class group an opportunity to become ambassadors on behalf of those who suffer with narcolepsy.
The students of 5th class hosted discos and a pyjama day of fun for all their students. There was a raffle to raise funds for Narcolepsy Ireland - strongly supported by the community of Athenry.
Education, awareness and support is the key difference for many of people who suffer with narcolepsy and can shape the opportunities available to them in their future. Scoil Chroí Naofa’s approach is extremely powerful in awareness raising and education. We are sure each student will remember this wonderful day for years to come.
A big thank you from Narcolepsy Ireland.
Narcolepsy Ireland were delighted to host our first kids meet up in August. We had a fun afternoon making new friends.
Narcolepsy Ireland ran a digital media campaign in collaboration with Inform Ireland in patient waiting rooms across Ireland.
Narcolepsy Ireland hosted a meetup in Dublin in May. Thanks to all who attended and made the afternoon so valuable.
Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy
The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day