Narcolepsy is so misunderstood' says Cork-based sufferer ALICE Cullen

Alice Cullen and Elaine Armstrong shared their story on Echo Live this week. Alice and Elaine wanted to raise awareness about narcolepsy and to promote the events taking place to mark the first World Narcolepsy Day on September 22nd.

See the full interview here. The Cork event is being held in conjunction with the Cork Echo's mini marathon.

Find out more about World Narcolepsy Day and our events here

Alice and Elaine also previously shared their stories on our blog. See their blog updates here:

Alice Cullen: Alice's Story
Elaine Armstrong: Elaine's Story

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Virtual Call March 24
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Cork Regional Meetup
Cork Regional Meetup

February Cork Regional Meetup

EUNN - 2023
EUNN - 2023

The 14th European Narcolepsy Days (END) conference took place in November 2023 in

Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.

During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.

Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland

NI Conference for World Narcolepsy Day 2023
NI Conference for World Narcolepsy Day 2023

Narcolepsy Ireland hosted a conference for World Narcolepsy Day

Narcolepsy Ireland is on TikTok
Narcolepsy Ireland is on TikTok

Narcolepsy Ireland is on TikTok

Show Your Support on World Narcolepsy Day 2021
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World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.

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Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.

Thank you to Pixie Lane
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Suddenly Sleepy Saturday 2020 – 14th March 2020
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Karl Wilson's fun-filled fundraising evening
Karl Wilson's fun-filled fundraising evening

Karl Wilson raised awareness anf funds for Narcolepsy Ireland to mark the first World Narcolepsy Day.

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World Narcolepsy Day 2020
World Narcolepsy Day 2020

World Narcolepsy Day (Sept. 22, 2020) is a day dedicated to raising awareness of narcolepsy on a global scale.