World Narcolepsy Day
Narcolepsy Ireland is collaborating with SOUND and coming together with 24 organisations worldwide to establish #WorldNarcolepsyDay. This ground-breaking day, taking place on Sunday, September 22nd, 2019, aims to raise Narcolepsy awareness on a global scale.
This being the largest narcolepsy awareness event to date we wanted to host fun family awareness events throughout Ireland. Click the images below to download/print (PDF) posters for the individual events.
What better way to do this and draw people's attention to an area than colouring the sky with beautiful bright coloured kites.
We are so blessed to have some of the world's most spectacular beaches and tourist attractions on our doorstep.
Enniscrone beach on the West Coast of Ireland and Bray Beach on the East Coast is where the kite events will be taking place. Bring along your kite on the day. Free kite to the first 25 families, one per family.
There will also be an awareness event held in County Cork. This happens to fall on the same day as the Cork mini marathon so there will be lots of people in the area. Along with other local volunteers, Sarah Edwards will have short awareness clips playing in the background while serving tea/ coffee to anyone interested in learning more about Narcolepsy.
In Dungannon, we will be coming together with family and friends of people with Narcolepsy to raise awareness, give support and inspiration to one another at the Cohannon Inn, Dungannon (212 Ballynakilly Road, BT71 6HJ, Dungannon). Everyone is welcome. Please join us 2-4pm.
Hosting all four events, we have volunteer bosses,
Sarah Edwards, Cork event
Elaine Armstrong ,Enniscrone event
Aoife McNulty, Bray event.
Sharron McSherry, Dungannon event.
We have newly designed Narcolepsy Education leaflets which will be available at all three events on the day and at a later date to download from our website.
SOUND (Sufferers of Unique Narcolepsy Disorder) have recently printed thousands of these educational leaflets and they will be posted to every GP and health centre in Ireland. Designed by Alex Galvin
There has been tremendous support since we first mentioned these events. Lots of people coming forward and volunteering to help out on the day, some offering free services or giving generous discounts.
One of our group members shared her personal story for awareness with a journalist and it was published in several top Irish newspapers at the weekend.
We have a few more upcoming newspaper interviews to raise awareness and plenty of other ideas planned in the up-running to this event. We want people to have fun, make memories and we will ask people to share photos on social media from whatever event they got to attend using #worldnarcolepsyday
Narcolepsy is a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle.
A related condition, idiopathic hypersomnia, is a chronic neurological disorder marked by an insatiable need to sleep that is not eased by a full night’s slumber. Narcolepsy and idiopathic hypersomnia affect over 3 million people worldwide, yet the majority of people living with these conditions are currently undiagnosed or misdiagnosed.
“Public knowledge of narcolepsy and idiopathic hypersomnia is limited and often inaccurate
We are encouraging our families and friends to take part in these initiatives with us and to raise their voices on social media using the hashtag #WorldNarcolepsyDay.