KristInE Beck’s interview with Ryan Tubridy
Kristine shared her narcolepsy story on the Ryan Tubridy RTE one morning show this week. The full interview is available to download here or via the embedded player below:
In the previous weeks Kristine had shared her story with Irish Times.
"A young mum who falls asleep up to 10 times a day has revealed how narcolepsy nearly cost her her life.
The disorder, which is characterised by excessive sleepiness, sleep paralysis and hallucinations, is often portrayed with slapstick comedy in Hollywood movies for laughs.
But for Kristine Beck it's a daily nightmare which left her with devastating injuries when she fell down the stairs after falling asleep. Read More
Naomi Grant also talked to Ryan this week about her daughter Emma, who developed Narcolepsy when she was only 5 weeks old. Now almost 18 months on, Naomi talks about the impact Narcolepsy has had on their lives.
Kristen and Logie, the hero who helped her when she fell down the stairs.
Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy
The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day
World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.
Based on our current understanding of the condition, people with narcolepsy should not be at increased risk from COVID-19.
Thanks you to Athenry based creche Pixie Lane for holding a fundraising and awareness raising day for Narcolepsy Ireland
Narcolepsy Ireland and Sound Ireland are delighted to announce this year’s Suddenly Sleepy Saturday event.