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Narcolepsy Ireland were delighted to host our first kids meet up in August. We had a fun afternoon making new friends.
Narcolepsy Ireland ran a digital media campaign in collaboration with Inform Ireland in patient waiting rooms across Ireland.
Narcolepsy Ireland hosted a meetup in Dublin in May. Thanks to all who attended and made the afternoon so valuable.
Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy
The 14th European Narcolepsy Days (END) conference took place in November 2023 in
Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.
During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.
Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland
Narcolepsy Ireland hosted a conference for World Narcolepsy Day
