Narcolepsy Ireland were delighted to host our first kids meet up in August. We had a fun afternoon making new friends.

Narcolepsy Ireland ran a digital media campaign in collaboration with Inform Ireland in patient waiting rooms across Ireland.

Narcolepsy Ireland hosted a meetup in Dublin in May. Thanks to all who attended and made the afternoon so valuable.

Orla Nolan - Rising Voices

Belfast Regional Meetup

Thank You - Scoil Chroí Naofa for hosting a wonderful fund raising and awareness raising day on behalf on their 5th class student with narcolepsy

Virtual Call March 24

February Cork Regional Meetup

The 14th European Narcolepsy Days (END) conference took place in November 2023 in

Leiden, the Netherlands, with a wide range of participants: researchers; neurologists and other health care professionals; representatives from the pharmaceutical industry; patients with narcolepsy and idiopathic hypersomnia (IH); their relatives and parents of children with narcolepsy.

During a patient session organised by eNAP (European Narcolepsy Alliance for Patients), the participants discussed the challenges faced by people with narcolepsy/IH at different stages of life. In addition to the participants from the conference, several Dutch narcolepsy patients and parents of children with the disease also contributed. They were divided into 10 groups, with two groups in each of the five subjects: newly diagnosed; parents of children; teenagers; young adults and adults.

Write up by Astrid Kabelmann-Jensen, M.Sc. Public Admin. (Danish narcolepsy patient) and Alan Hickey, PhD. (eNAP and Narcolepsy Ireland

Narcolepsy Ireland hosted a conference for World Narcolepsy Day

Narcolepsy Ireland is on TikTok

World Narcolepsy Day (Sept. 22, 2021) is a day dedicated to raising awareness of narcolepsy on a global scale. Co-led by 26 patient advocacy organizations across six continents, World Narcolepsy Day inspires action, increase public knowledge, and elevate the voices of people living with narcolepsy worldwide.