The 10th European Narcolepsy Day, which returns to Switzerland 9 years after the first event took place in Lugano in 2010.
The EU-NN is a non-profit organization whose mission is to increase public awareness about narcolepsy and related diseases and to support initiatives in research, education and management to improve the quality of life for all affected persons. Over the years the EUNN narcolepsy day has become a unique opportunity for scientists, patients, physicians and healthcare professionals to receive updates and exchange ideas and experiences.
This year’s program, which immediately follows the 16th European Narcolepsy Master Class (Bern, May 17), includes clinical and scientific sessions on the narcolepsy borderland, lectures (“year in review”) on the most recent publications in the field of narcolepsy, short presentations by young investigators on current research projects, and a poster session. Representatives of national patient organizations will host a joint workshop with clinicians on “quality of life in narcolepsy” and a second session, in which questions prepared in advance by patients, will be discussed together with physicians and scientists.
In addition to the traditional awards for the best presentation and poster, the EU-NN is honoured to present for the first time the “European Narcolepsy Award” to Professor Emmanuel Mignot (USA) and Prof. Masashi Yanagisawa (Japan) for their outstanding research contributions to the field of narcolepsy.
https://www.europeansleepfoundation.ch/event/10th-european-narcolepsy-day for more Information
Sound Ireland and Narcolepsy Ireland hosted a kite flying event on Bray beach to celebrate World Narcolepsy Day
On September 22nd Narcolepsy Ireland hosted a meet up in Dungannon to mark the first World Narcolepsy Day
On Sunday 22nd September Narcolepsy Ireland and Sound Ireland held a kite flying event on Enniscrone beach to raise awareness for narcolepsy and to mark the first World Narcolepsy Day.
Struggling to stay awake during lectures may sound like a joke amongst students, but Christine Donaghy knew there was something more sinister surrounding her tiredness.
22 year old Co. Sligo woman Aoife spoke to Ciara Galvin at the Sligo Champion in the lead up to the first #WorldNarcolepsyDay. She described how her life was turned upside down after being diagnosed with narcolepsy after getting a vaccination for Swine Flu.
A Dublin woman has spoken about living with narcolepsy, a condition that you can’t see but it has a great effect on a person’s life, and how it is treated in Ireland.
Jodie Kelly was 13 years old when she was diagnosed with it, but doctors took a while to diagnose her as she was told it was hormonal and she was ‘becoming a teenager’.
World Narcolepsy Day is dedicated to raising awareness for narcolepsy on a global scale. The condition is a neurological one that impairs the brain’s ability to regulate the sleep – wake cycle. Kristine Beck shares her story of diagnosis with Susan Keogh.
A Co Armagh mum whose life has been devastated by a chronic sleep disorder is bringing everyone in Northern Ireland living with the same condition together on the first ever World Narcolepsy Day.
Dylan Black spoke to Cork’s 96fm about living with narcolepsy. Dylan along with others have been raising awareness for World Narcolepsy Day this Sunday 22nd.
Tadgh Kennedy from Sound Ireland spoke to Tommy Marren on MidWest radio to raise awareness for World Narcolepsy Day