Claire Crisp is an award-winning author and advocate for children with narcolepsy. Her book Waking Mathilda – A Memoir of Childhood Narcolepsy is about 13 year old Mathilda who developed narcolepsy when she was 3 years old. Mathilda will be attending with her mum and will be speaking about her narcolepsy and cataplexy.

Mathilda Crisp is the daughter of Claire Crisp’s, an award-winning author and advocate for children with narcolepsy. Her book Waking Mathilda – A Memoir of Childhood Narcolepsy is about 13 year old Mathilda who developed narcolepsy when she was 3 years old. Mathilda will be attending with her mum and will be speaking about her narcolepsy and cataplexy.

Dr. Mignot is Professor of Psychiatry and Behavioral Sciences at Stanford University and Director of the Stanford Center for Sleep Sciences and Medicine. He is internationally recognized for discovering the cause of narcolepsy.

Dr Mark Patterson – We are delighted to welcome Dr. Patterson back. Mark is a Paediatric Consultant in Virginia, Dad to daughter Melissa who has narcolepsy and cataplexy. Mark created the BedRace for narcolepsy which he brought to Ireland in 2018. You can see more on his website at https://day4naps.org/

Ragy is a physiotherapy masters student at Trinity College Dublin. Ragy will be speaking about physical activity and exercise for people with narcolepsy.

Hilary Lyons is a secondary school teacher with responsibility for special education needs in her school. As she has NWC herself and understands its' impact on education, Hilary believes that we should advocate for narcolepsy as a special educational need in schools and that parents should seek accommodations accordingly for their children with narcolepsy.