Sandra's Story

Hi my name is Sandra. I'm 36 yrs old and I was diagnosed with narcolepsy and cataplexy back about 10yrs ago ...

Where do I start with my story it's hard to start ... because people say I'm the same ... its  definitely not the same.

When I say I'm exhausted it means I can't go any further that I have pushed my limits and I have no more to give ..

My cataplexy has also been a major issue where I have fallen over and heard everyone around me talking and panicking and not understanding what is going on .. its so scary not been able to communicate...

I have two children age 17 and 14 who thank God have a great understanding of what happens to me but most of all I have my husband Davy who even if he doesn't fully understand he tries so hard to help me...

I do feel like no one fully understands the exhaustion and the brain fog and confusion I deal with ... and my memory is so bad that it can get frustrating for me and everyone I'm my family ... when I try to explain to people I get a reply "oh I'm the same" .... then I give up trying because I know they will never get it ... 

I stay positive I get up and try best to keep moving and keep motivated.. 

They are NOT the same .... but we are NOT ALONE ..